I toss and turn, trying to find any position to get away from the pain. The compounding years of living with a 90° angle in my back wears in my body. Potential arthritis, hypothyroidism… the list continues to grow. As a person with a disability, our bodies often age faster. I hear people around me … Continue reading “Getting ‘old’ is a privilege” By Dr. Josie Badger
Let me start off by saying mental illness and pandemics are friends. Actually, not just friends, best friends, who share the same passion: making people sick. COVID-19 is threatening and devastating the health and livelihood of so many people. We’re not just wrestling with boredom and demands for bangs, we’re straddling a scary line between … Continue reading “Pills, Pups, and the Pandemic” By Dr. Rachel Kallem Whitman
Taking maximum precautions against catching a globalized pandemic when you are among the at-risk population is not over-reacting or panicking. As members of this vulnerable group, stocking up at home sufficiently with necessary supplies and staying quarantined from outside potential exposures is a life sustaining activity. Unfortunately for us with home health care, being quarantined … Continue reading “Stay Calm and Keep Fighting” Disability peer advice during COVID19- By Anomie Fatale
My husband and I bought our first home in December 2015 and spent that Christmas Eve sleeping on the floor on an air mattress with a tiny light up tree. Although it was not elegant or even very accessible, it was exciting. I woke up Christmas morning expecting exciting presents, maybe some new shoes or … Continue reading Smart Home Living
Jessica Gardner poses with her service dog, Ford at the 2019 Ms Wheelchair Pennsylvania competition. Picture credit to Alex Jones Three years ago, I received the best birthday gift I've ever been given, my Canine Companions for Independence service dog, Ford. I can honestly say in my life he has opened doors, both physically and … Continue reading Service Dogs, Opening Doors to Independence!
Caption: Josie Badger poses with her husband, Mike, their dog, and their wedding party Not long ago, I remember the excitement that spread across America when the Supreme Court decided that “love ruled,” giving the right of marriage to gay couples. News articles, Facebook posts, and email subjects all celebrated the news of “marriage equality.” … Continue reading Marriage Equality for All, Unless You’re Like Me
by Alex Wegman My Instagram inbox is full of messages from disabled people who are somewhere on the spectrum of awaiting or seeking parenthood, and they are terrified. They know it’s something they want, but have been told overtly and subtly that they’re not cut out for it. They’ve absorbed the narrative that disability precludes … Continue reading Parenting Disabled: An Exercise in Confidence and Creativity
by Dr. Rachel Kallem Whitman I did everything I was supposed to do. I graduated high school with a 4.0 GPA. I attended the top public university in the country. I boasted great grades, a long list of extracurricular activities, and an impressive resume. On graduation day I donned my cap and gown, celebrated with my … Continue reading “Because That’s What You Do”
By Anomie Fatale Home is where the heart is. It’s also where home care is managed and all essential activities of daily living occur for most people with disabilities. Things needed for a stable home environment are accessibility, stability, and function. Any living environment must be set up so that a disabled person has access … Continue reading Housing: The Primary Struggle of my Disability
As a child I remember playing make-believe, pretending that I was a teacher, a doctor, a veterinarian, a marine biologist, a secretary. I would imagine what it would be like as an adult in one of these careers. I imagined myself swimming with the dolphins with a whistle, teaching them how to jump and spin, … Continue reading Working with Dolphins: A (W)Holistic Path to Career Discovery
